Hope Hindered

I first saw this neurologist 6 weeks ago. She was hopeful that she could find someone to block the nerve pain, correctly diagnose the type of stroke I had and then treat my spasticity in my arm. 

Since the pain management doctor wasn’t able to help, she won’t touch the spasticity, and will refer me to Dallas   According to my CT scans, she believes it was a brain stem stroke and not a Middle Cerebral Artery stroke.  She also said the scan picked up a portion of my chest and I may have an aortic aneurysm and I should have my pcp refer me to a cardiologist. 

So, once again, I’m left in limbo searching for someone to help my pain. A friend posted about Relief Retreats, which looks amazing, but not covered by insurance. 

They won’t cover opioids because one could become addicted, but they also won’t cover alternative or wholistic treatments. If, they did, perhaps I could actually function in the world and have a job again. They would save money, but logic doesn’t seem to be used by them. 

Relief, Revoked!

Today I saw a pain management doctor. He was very nice, but basically said I’m too complicated, and he doesn’t want me to have another stroke, so he wants me to see someone in another state with more experience and tools. So, until then, he wants me to try a new pain med.  

I react weirdly to most meds, but I agreed to try. He wrote a script for a week supply, and gave a coupon. The Pharmacy informed me that because I have a Federally assisted insurance, Medicare D,  I am unable to use the coupon and they won’t pay for the med., a week supply is over $200. 

I feel completely defeated, again. All I want is to not have my face feel like acid is being poured on it, remove the vice grip from my head, take the fire poker out of my ear and the ice pick out of my eye. Oh, and also I would like the pins and needles to go away from the right side of my body, but perhaps I’m asking for too much. How many more years will I search for relief. Life seems to just be a waiting game. 

By Robin